On Starting Over

My old life has come to an end. Exhale. Inhale.

In its place is a brand new life, full of new opportunities, and new challenges. I carry with me the lessons and experiences, successes and failures of the life that is no more, not as a burden, but a treasure chest. From everything I have seen and done, all the people I have known, there is a rich collection of memories to weave into new works of art, new writing, new… whatevers. There are new connections to be made, while still nurturing the best of the old friendships. A new family to create, full of friends and siblings and all their offspring and relationships. 

It’s not exactly a new way of looking at the world —my philosophies have always remained constant. Indeed, my core philosophy, that of looking for the beauty in every situation, has kept me going through some very dark times. It’s clarity of that view of the world that is taking shape now. Putting philosophy into action. Creating the beauty I seek. And helping others find their own beauty, create their own magnificence.

I’m letting go of the forces of old anger, old sadness, while using those emotions as texture. You can’t ignore those feelings or they will grow without you even knowing it. They must be acknowledged, but they do not have to be the dominant force. They must be balanced with compassion, empathy, love. And communication.

I’m recognizing the causes and contributions of all sorts of experiences, good and bad, learning from the past while not living there. Neither am I living in the future, even as I have my eye on the horizon. I am, at last, taking heed of the past and hope of the future and planting my feet firmly in today, this moment. Noticing what’s happening around me right now, what I can do to make a difference right here, who needs a hand, a smile, a chance to be heard.

It’s odd, but this sense of peace is hitting me as try to recover from a very tough time. Health and home, family and work, all have been in turmoil for quite a while now. Everything was spinning out of control. But I have an amazing assortment of people who are fighting for me – people who are related and not, people taking care to listen, encourage, support, heal. It finally dawned on me, all of these lovely people are fighting for me, surely I must fight for myself as well. Surely I am worth the fight. Surely everyone is worth the fight.

Yes, this world can be exhausting, sometimes darkness seems to be eternal. But there really is beauty everywhere – and where you don’t see it, you have to create it.

So here I am, standing in the moment, Working. Creating. Living. And loving every bit of it.

To all those who have stuck with me, thank you. I love you more than I can ever express (but I’ll keep trying). And hang on. It may not always be smooth sailing, but damn, it’s going to be one hell of an adventure. 

The Longest Days

(Written June 23, 2018)

He greets me with
“Hello, Daughter!”
Unsure of my name,
he plays it safe.
Still clever, after all.

Remember me.
Help me remember.

I watch as he engages
in secret conversations
with the past.
Ghosts and visions
are his companions now.

Remember me.
Help me remember.

His eyes no longer see
what is before him.
His mind creates
what he needs.
Perception is reality.

Remember me.
Help me remember.

They say, “Go where they are.”
But how do I enter a world
of his own making?
I can only wait for his return,
time to time,
and listen as he talks
of his adventures.

Remember me.
Help me remember.

He tells me he loves me as I leave.
Words that never came easy
before disease opened a door.
Previously censored emotion
now for everyone to see.
Dark cloud meets silver lining.
We weather the storm.

Remember me.
Help me remember.

For Jack Blackwell, 1919-2004
I remember, Daddy, with love.
— Lolo

Clever Girl

(written June 23, 2018)

I see what you did.
It took me a while,
but I’m on to you now.
I thought you snuck out on us
in the middle of the night
while we were getting ready
for the long haul.

You left us.
You left him.
You left us with him.
We were prepared
to take care of you.
We were not prepared
to take care of him.

He was devastated
at the loss of you.
It did him in.
Finished him off.
His mind had to create
a new reality, one where
you were still here.

I thought you gave up,
threw in the towel.
I was wrong.
You stepped aside
for a reason.
“Here he is, kids,” you said.
“This is your father.

Get to know him
as I knew him.
Get to know the man.
Get to know his heart.
You will see why I stayed
as long as I could.
And why I had to go.”

I saw it today,
for the first time,
after 15 years.
Remembering him,
I remembered you.
And finally,
it clicked.

The last lesson
you taught us.
The last act of love.
“Get to know him
and you’ll get to know me.
You’ll get to know us.
And you’ll discover yourself.”

Oh clever girl.

This Election Is About Your Health

Everyone – EVERYONE – will eventually have some kind of healthcare issue. No matter how healthy you are today, no matter how well you take care of yourself, no matter how good you feel or how invincible you think you are, there will come a time when you will need some sort of medical attention. And so will the people you love.

It is not a question of what some people did wrong. Nothing is that easy. And once someone gets sick, no matter the cause, it doesn’t matter, they still need care. You can’t assess blame and expect someone to therefore be cut out of the system or penalized with greater costs. You can say someone should never have smoked. Lovely. That’s still your uncle that has cancer. You can say somebody should have exercised more and eaten less. So very helpful. They still have diabetes or cancer or arthritis or one of a thousand other conditions that could eventually lead to disability and death. Are you really willing to say “tough cookies, sweetie” and watch them die?

We have to fundamentally agree that we’re all in this together, and commit to taking care of each other as best we can. That means providing care when people get sick, regardless of what circumstances contributed to getting them there.

And if you think you’re guaranteed protection with your current insurance, think again. You can lose that great coverage in the blink of an eye, without having to do a damn thing yourself. The company you work for can decide not to contribute to the cost. They can go out of business. They can decide they don’t need you anymore, or you’re not worth your cost. Or maybe you would like to open your own business. You’ll be flying solo once that COBRA coverage runs out. Before the Affordable Care Act (“Obamacare”), if you lost your insurance for any reason, it was open season on you. IF you could get coverage (no nasty pre-conditions, no gaps in between policies), the price skyrocketed. How much of your income do you want to divert from your mortgage/rent, or vacations, or retirement?

The ACA was supposed to be the first step in reforming the way we do business in the healthcare and insurance realm. There is so much reform needed. You know how you discover that need? Get sick. Throw in any job or insurance changes, and you’ll soon find out just how dysfunctional the system is. Doctors are having to juggle treatment options based on which insurance plan you have. Extreme kudos to those that manage to keep on top of all that information, but I would really rather their time and energy be spent on what will help me get better, not what specific insurance plan covers which drug, and which words need to be included in the description to get approval for surgery or p.t. or diagnostic tool. And God forbid your doctor doesn’t pay attention to such things – you’ll either pay thousands more for your care, or not get that care in the first place.

It’s time to set aside the prejudices and smugness about who deserves what care and pitch in. Fight for healthcare access for all. Fight for protection for pre-existing conditions, but don’t stop there. There are so many wonderful advances in healthcare these days, but there are so many obstacles to getting those advances to the people that need them.

People like to tout their religious beliefs in this country. Time to put actions with those beliefs. Let’s actually take care of each other. Support healthcare for all, and vote for candidates that will actually work for better health for everyone. Right now that means voting for Democrats. The Republican Party has made it their mission to destroy any form of healthcare assistance (don’t think for one minute that Social Security or Medicare is safe). And if you think any other party has a chance to win, get over that thought right now. That’s one of those lovey ideas in theory, but disastrous in practice. Maybe the parties will change over time, maybe the system will be saner. But for now, the stakes are too high to play with your vote.

Vote for a healthy America. Make your vote count. Vote for the Democrats.

Sometimes I Talk to Myself

I found this in my notepad from September 17th.  Don’t remember writing it. That’s not unusual. But sometimes it’s like I’m leaving messages for my future self. So here ya go, Self.

Do not give in to the shadows
that try to overtake you.
You are important.
You are light.
You are vital
to the balance
of the universe.

Someone somewhere needs
to hear your voice today.
Reach into your soul and know
by providing love,
you will receive love.

We are all connected,
past, present, future.
Take strength from those
who have found a path
through their nightmares
to find your way
through yours.

Be courageous because
courage is within you.
Feel the love
others have left for you.
Then pass it on.

This is my story.

I was born without a shell.

I was a “sensitive child”, empathetic to the point of sadness, easily moved to laughter or tears. Naive, emotionally vulnerable. I trusted people too easily, a trait I’ve taken through adulthood into old age. I try to listen to people. I can’t help being curious, and usually look for ways to try to help, with varying degrees of success. People told me I needed to toughen up, get a thicker skin. Not wear my heart on my sleeve so much. If I let everything get to me, I’d only end up getting hurt.

When I have gotten hurt, I’ve usually retreated for a while, then stepped back out, ready to believe people again. Though perhaps with a bit of “seasoned reasoning” thrown into the mix. Sometimes the retreat has been too long, too deep, depending on the recovery needed. Sometimes retreating wasn’t enough. Sometimes, when the wound was too much, my particular coping mechanism was to box things up and bury them as deep in my soul as I could possibly reach. But even that wasn’t enough.

My only way of building a shell when I was a kid was to gain weight. To be clear, this was not a conscious strategy. I just avoided being “active”, preferring to read, write, draw, all very sedentary interests, and let nature take her course (less movement = more weight). I didn’t go out much (though I had a decent group of friends), physical activity for girls was pretty much limited by location – no gyms or classes near me. No kids my age or gender anywhere nearby. School sports for girls were pretty much non-existent, and if you carried any extra weight, any activity was an exercise in futility and embarrassment. This was back when child obesity wasn’t all that common. There were no specialty stores, no compassionate doctors, no treatments beyond amphetamines or fat camps. Given my genetic makeup, lack of access, and emotional tendencies, I’m surprised I didn’t weigh 200 lbs or more by age 15. But the dye was cast. Weight was a convenient armor.

In my early twenties, I decided I didn’t want to spend my life as a virgin, no spinster aunt stereotype for me. So I lost my excess weight and embarked on my journey as a single woman in the 80s. That journey was, to put it mildly, a bit on the rocky side. I got an apartment, much to the disappointment of my father who wanted a live-in caregiver for the rest of time, and quite literally said “How many kids do I have to have before one will stay with us?” I was number seven, and had stayed at home until age 23. I guess something more than seven, Daddy.

Despite my father’s certainty I was going to be some sort of wanton woman, sleeping with anything that moved, I did not go all that crazy. I don’t have a list of men as long as my arm. Or women. I just have a short progression of “relationships” that, shall we say, left some scars. At the same time, I had a few “incidents”, where men I trusted, men I worked with, men I thought of as friends, taught me where the power actually was in the world. That power was not with me. My armor was gone, and all that was left was the trust I had in people that told me I was worthy of love. (Love, by the way, has many definitions, not all of which are particularly helpful to the supposed object of that love.). That trust was faltering.

A few years went by, I had a series of “disappointments” in the romance arena. One man I dated briefly decided sex with me while I was sleeping was the way to go. I lived with a man who liked to scream “spit it out” when my throat closed in anger during arguments after he came home drunk. I moved to Chicago for a Brand New Start, and was literally pulled into my apartment building by a man I’d known for all of two hours. I was terrified he was going to hurt me, or worse, and didn’t call for help even when he was gone a day later because I was afraid he’d come back. Sex was the price I’d pay for survival. Silence was the price for safety.

That was the last sexual encounter I had. Not intentionally, or so I thought, but just me saying ok, enough of that. I boxed it up, put it away with all the other experiences that seemed to reinforce my feeling of powerlessness. Little things: men who patted me on the butt, cornered me in elevators, pulled me toward them as I pulled away. All the little bits of intimidation that told me I was only safe as long as this man or that man decided to let me be safe. So yay men for backing off whenever they did?

I never considered myself a victim, though. I thought I was stupid getting into situations, too timid, too weak. I went on my way, focusing on friends, interests, career, etc. No dating? No problem. Tra la la.

At the same time, I gained 100 lbs. That’s right, 100. Even though I was walking two miles to work and back. Stress is an amazing thing, buried stress even more so. Nobody ever said “what the hell is wrong with you?”, least of all me. I was building my wall, what’s more normal than that? Reinforced by family history and what would today be defined as endocrine issues, it was overlooked, ignored. Year after year. My armor became thicker and stronger. And heavier.

I am bearing the cost of that armor now, have been for years. A lifetime of weight, emotional and physical, taking its toll through cancer, diabetes, arthritis, heart troubles, depression. I am a stew of pre-existing conditions and multiple co-morbidities. Destined for a relatively early demise, or descent into dementia.

But something has happened recently that might change things. For me, for millions of women and men.

One woman decided to take on the senate, and the so-called president, and the Supreme Court. One voice, one story, against a phalanx of old white men (and a few women) determined to keep the status quo. One woman standing up, igniting and reigniting millions of voices, inspiring women and men to tell their stories of assault and intimidation and violence.

I allowed my experiences to change me, change my life’s path, change my spirit. I put away dreams I had since I was a child, shut myself down. For decades, I have lived with the result of my own silence. Allowed my self-built shell to overtake me.

No more.

I may have waited too long, I don’t know. There are certainly options that are no longer open to me. At age 60 and sans uterus & ovaries, I won’t be having any kids. Probably won’t get married, but maybe there’s still some romance out there, who knows. But I’m not sure wife or mother was ever in the plan. There are a lot of other dreams still waiting to be made a reality, however. Being a writer, an artist, an activist. Those are all things in my power, not limited by age or strength or mobility. The only obstacle for me has been that box buried beneath the armor.

But watching that one woman stand so bravely in front of a bunch of ranting old men, I felt my armor crack. I felt myself shedding it like a decaying skin. And that box rose up and broke open, bringing all that pain back into the light.

A new armor is in place of that old shell. It’s agile and efficient and strong. And it carries with it truth, and hope.

I’m one woman, and an old one at that. But look what one woman can do? And all the other “ones” out there making their voices heard. We’re part of a much larger army. All ages, all backgrounds, all races, all beliefs. United by experience and sheer force of will. This army will not lose. There is no going back to fear or silence.

This country, this world, this future is ours.

One Voice. Then Another.

Courage, my pets.
We’ve been here before.
But this time we’re stronger,
And ready for war.

It’s not just one battle
Nor one point of view.
This failure of justice
Ignites us anew.

This time our anger
Will not fade away
Into normal routine or
Just one more day.

This time we’re solid,
Determined and steady.
Make no mistake
For this fight, we’re ready.

We’ve not come this far
To give up when it’s rough.
We always rise up.
We’re smart and we’re tough.

Our voices are louder,
Incessant and clear.
There’ll be no more silence
Nor hiding in fear.

We’ll patch up the bleeding
And tend to our scars.

The Resistance has risen.
This country is ours.

Remembering on the Longest Day

I was going to start off the blog with an introduction to perceptiVision, the purpose, mission, etc.  Rather than just a big description of what it’s going to be, I thought I’d start with an example of what it is. Hopefully you’ll get an idea along the way of who we are, where we’re headed. I’ll save all that other stuff for later.

So, what are we up to?  My sister Jackie and I are dipping our toes in the waters of event hosting for a cause. We hope this will be the first of many such events, but we’ve been a little shy about it so far. We’ll do better when we get some practice. We tend to take things slow, at first.

The chief point of this first event is to stop and take note of the fight against Alzheimer’s and dementia. Our father, Jack, died back in 2004 after his own battle with the disease. It was just a year after our Mom died from heart disease. Yes, that will be a fundraiser, too.

See, part of my mission with this site, and with the path I’m taking at this point in my life, is to share resources and information about all kinds of issues, including health. I know whenever you are faced with bad news about your health, or that of someone you love, it can be so overwhelming. I hope to help you wade through all the information sources out there, and find what you need, including support, to make it through each day. We all face so many challenges, we have to help each other find our way, don’t you think?

I truly believe knowledge is power. So it’s my job to help you figure out what you have to do and how you have to do it, your way. I know from experience you can find peace even in the worst situations, and still find the humor and beauty that makes life worth the effort. With any disease, or life in general, there are good days and bad days. You try your best to push through those bad days, and treasure every good second you get.

I promise to be as honest as I can be with any of my own challenges (health and otherwise), and share anything at all that I can find that might make it a bit easier for you as you navigate your own twists and turns.

To start things off, this week we’re focusing on Alzheimer’s, and the fight for care, treatment, and a cure. Our way of marking The Longest Day, June 21st, is to have a little art party. We’re going to do some painting, drawing, maybe write a little poetry – basically whatever we feel like to best express ourselves, and to remember our father’s life. We’re not sure how many people will join us (like I said, we’re just getting started with this sort of thing), but even if it’s not  the biggest event ever, it’ll be a good day.

I’ve been looking to history a lot lately, finding out family stories from sisters, and even reading about this country, where the ancestors came from, how past generations lived.  I guess you could say I’m looking to the past to see where I’m going in the future.  In addition to painting or whatever creative activities we’ll be doing on Thursday, we’ll be remembering those stories and looking at old photos, sharing our perceptions of the past, our vision for the future. (See what I did there?)

I’m sharing one of my favorite pictures of my parents along with this post. It’s when they were just getting started back in 1940. Jack and Dorothy. It started with an airplane ride. Hope they’re flying around the stars now.

Take a moment and think of the people in your life that matter to you. And maybe create a little something just to add a little beauty to your life.